This page contains links to web sites and pages having to do with Dysautonomia. It is not a complete listing, and please,

Be Advised: Medical information should always be reviewed with your physician.

The information is divided into the following categories:

• Acute Idiopathic Polyneuritis - Guillain-Barré Syndrome
• Familial Dysautonomia
• Government Links
• Medical Facilities Links
• Multiple System Atrophy - Shy Drager Syndrome
• Mitral Valve Prolapse Dysautonomia
• Paragangiloma
• Parkinson Disease
• Pheochromocytoma
• Reflex Sympathetic Dystrophy Syndrome (RSDS)
• Tetrahydrobiopterin Deficiency
• Aromatic L-Amino Acid Decarboxylase Deficiency (ALADD) Home Page
• Other Sites

Acute Idiopathic Polyneuritis - Guillain-Barré Syndrome

The following sites provide information on Acute Idiopathic Polyneuritis - Guillain-Barré Syndrome:

• Guillain-Barré Syndrome Foundation International http://www.webmast.com/gbs/
• Guillain-Barré Syndrome Fact Sheet - National Institutes of Health, NINDS http://www.ninds.nih.gov/health_and_medical/pubs/guillain_barre.htm
• Physician Information About Acute Immune Polyneuropathies - Washington University School of Medicine, St. Louis, MO http://www.neuro.wustl.edu/neuromuscular/antibody/gbs.htm
• About Guillain-Barré Syndrome [J.Steinhilber] http://www.adsnet.com/jsteinhi/html/gbs/gbsmain.html
• The GBS Association, Epping, Australia http://www.ozemail.com.au/~guillain/about.html

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Familial Dysautonomia

The following sites provide information on Familial Dysautonomia:

• Dysautonomia Foundation Inc. http://www.med.nyu.edu/fd/fdcenter.html
• Dysautonomia Treatment and Evaluation Center http://www.med.nyu.edu/fd/treatmentCenter.html

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Government Sites

• Department of Health and Human Services http://www.os.dhhs.gov/
• National Institutes of Health (NIH) http://www.nih.gov/index.html
• U. S. National Library of Medicine http://www.nlm.nih.gov/ (use this site to search for medical journal abstracts)

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Medical Facility Sites

The following is a listing of Medical Facilities that have an interest in the diagnosis and treatment of Dysautonomia:

• Vanderbilt Center for Space Physiology and Medicine http://www.mc.vanderbilt.edu/gcrc/space/index.html
• The Autonomic Laboratory at University Hospitals of Cleveland http://mediswww.cwru.edu:80/dept/neurology/autonomic.html
• The Mayo Clinic, Rochester, MN  http://www.mayo.edu:80/
• The Mayo Clinic, Jacksonville, FL http://www.mayo.edu/mcj/MCJhome.html
• The Syncope Center at Columbia Presbyterian Medical Center http://cpmcnet.columbia.edu/dept/syncope/Welcome.html
• Center for Pediatric Neurovascular Regulation, New York Medical College, Valhalla, New York
  http://www.syncope.org

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Mitral Valve Prolapse Dysautonomia

The following sites provide information on Mitral Valve Prolapse Dysautonomia.

• Houston MVP Syndrome Foundation http://web.wt.net/~diana/mvp.htm
• The Society for MVP Syndrome Itasca, IL http://www.mitralvalveprolapse.com
• National Society for Mitral Valve Prolapse and Dysautonomia http://www.mvprolapse.com/
• Wright State University: Excerpts from book by Dr. Kristine A. Scordo, Clinical Director, The MVP Program of Cincinnati  http://www.nursing.wright.edu/anp/mvphtm.htm

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Multiple System Atrophy - Shy Drager Syndrome

• Shy- Drager Fact Sheet National Institutes of Health, NINDS http://www.ninds.nih.gov/health_and_medical/disorders/shydrger_doc.htm

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Paraganglioma

• Anton and Yvonne Overklift, The Netherlands, Support Page  http:home.planet.nl/~overk064

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Parkinson Disease

The following sites provide information on Parkinson Disease:

• The National Parkinson Foundation, Inc. http://parkinson.org/index.html
• Parkinson's Disease: Hope Through Research Page - The National Institutes of Health, NINDS http://www.ninds.nih.gov/healinfo/disorder/parkinso/pdhtr.htm

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Pheochromocytoma

The following sites provide information on Pheochromocytoma:

• Pheochromocytoma Support and Awareness Group http://www.angelfire.com/hi/Pheochromocytoma/index.html

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Reflex Sympathetic Dystrophy

The following sites provide information on Reflex Sympathetic Dystrophy:

• Reflex Sympathetic Dystrophy Syndrome Association of America (RSDS) http://www.cyboard.com/rsds/
• Reflex Sympathetic Dystrophy Syndrome(RSDS) Fact Sheet - National Institutes of Health, NINDS http://www.ninds.nih.gov/healinfo/DISORDER/rsds/rsds.htm
• Reflex Sympathetic Sympathetic Dystrophy On Line (RSD On-Line) http://home.ptd.net/~paulbarb/rsdweb.htm
• The RSDHope Group http://www.rsdhope.org/

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Tetrahydrobiopterin Deficiency

The following sites provide information on Tetrahydrobiopterin Deficiency:

• The Tetrahydrobiopterin Home Page, University Children's Hospital, Zürich Switzerland
  http://www.unizh.ch/~blau/bh4.html
  

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Other Sites

The following sites may provide additional information that may help in researching information on Dysautonomia:

• American Academy of Neurology (AAN) http://www.aan.com/home.html
• American Autonomic Society http://www.mc.vanderbilt.edu/gcrc/aas/indx.htm#American
• Hardin Library for the Health Sciences, University of Iowa http://www.arcade.uiowa.edu/hardin-www/md.html
• North American Society of Pacing and Electrophysiology (NASPE) http://www.naspe.org
• NORD National Organization for Rare Disorders, Inc.http://www.pcnet.com/~orphan/
• Physician Information About Autonomic Disorders, Washington University School of Medicine, St. Louis, MO http://www.neuro.wustl.edu/neuromuscular/autonomic.html
• Care - Cardiac Arrhythmias Research and Education Foundation, Inc., Irvine, CA http://www.tans.com/lqt/

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Aromatic L-Amino Acid Decarboxylase Deficiency

The following sites provide information on Aromatic L-Amino Acid Decarboxylase Deficiency :

• Aromatic L-Amino Acid Decarboxylase Deficiency (ALADD) Home Page
  www.aladd.com

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Search NDRF or the Web: 

The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided.  Questions or problems regarding this web site should be directed to .

Medical questions and information, should be reviewed with your physician. 

Copyright © 1999 NDRF. All rights reserved.
Last modified: Monday January 28, 2008.