The NDRF Patient Handbook
For Patients with Dysautonomias

Authors: Dr. David S. Goldstein, MD, PhD and Linda J. Smith

This handbook was written from a patients perspective, and provides information on the autonomic nervous system, dysautonomias and important issues that many patients face in living with dysautonomia.

The handbook is divided into two sections: Dysautonomias, and Living with Dysautonomias.  There is also a detailed Glossary of Terms to help explain the medical terminology.

Chapters Include:

• The "Automatic" Nervous System
• Dysautonomias
• Tests for Dysautonomias
• Treatments for Dysautonomias
• Living with Dysautonomias
• Caregiving
• Support Groups
• Social Security and Disability
• Children  and Dysautonomia

Published with the generous support of the Medtronic Foundation, the book is available in a  PDF format online, or a hardcover book can be purchased by following the order link below:

Order Form

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NDRF Handbook - PDF Version

The Fainting Phenomenon
Understanding Why People Faint And What Can Be Done About It

Authors: Dr. Blair P. Grubb, MD and Mary Carole McMann, MPH

Dr. Grubb and Mary Carole McMann have authored a layperson's guide to fainting and the disorders that cause this symptom.

The guide is an excellent reference for anyone who wishes to learn more about fainting problems, as well as Orthostatic Intolerance, Hypotension, and Chronic Fatigue.  The guide also contains an extensive glossary of terms.

Chapters Include:

• The Normal Nervous System
• The Normal Cardiovascular System
• Orthostatic Intolerance and Orthostatic (Postural) Hypotension
• Neurogenic Syncope
• Fainting in Children and Adolescents and Older People
• Diagnosing Fainting
• Treating Fainting

Order Form

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NDRF Conference Video Set
Orthostatic Intolerance and Syncope Symposium Three Video Tape Set

Speakers: Dr's. David Robertson, David Goldstein, Phillip Low, Blair Grubb, Rogelio Mosqueda-Garcia, David Streeten, Julian Stewart and Christopher Mathias.

A three video tape set of the NDRF Conference on OI and Syncope, held in July of 2000.  The sessions were presented to an audience of patients and family members impacted with Dysautonomia.

Discussion Topics Include:

• The Autonomic Nervous System
• Orthostatic Intolerance 
• Fainting / Syncope 
• Autonomic Conditions in Children and Adolescents
• Chronic Fatigue
• Other Autonomic Disorders