My partner has been diog.with MSA. Are any of you out there familar with this? ANY bit of info will be appreciated. Thanks...jp

Check out some of the previous forums and there are some sites listed with a lot of the dysautonomia illnesses listed. OR>>>>>>>>>>you can look up dysautonomia and try from there. Good luck, and welcome aboard.
SUsie

I have been reading the abstracts on the home page...very informative. I have yet to have an "official" dx of which type of autonomic disorder I have...thinking it is involving the whole autonomic system; By official, I mean by my primary doc. I am studying these abstracts, so I can have a "confab" w/ him. My dx came from my chiro who is one of the smartest docs I have ever had in my life! But the GP has to PROVE it by either sending me to Toledo to see Dr. Grubb, or sitting w/ me and reading some of the abstracts and comparing to my medical history. I am convinced that autonomic neuropathy is at the root of the majority of my problems, just have to "educate" him some more.

This is a great site, with tons of info, so just kick back and do some reading. I am sure you will get lots of answers.

God bless and keep you,
Diane aka "Lady Di"

Hi Lady Di!! Love writing that. When I had my stroke and no one caught it at the time, the infectious disease doc, who I had kayaked with told me I was too complicated for a GP, that I needed an internist. It took a couple of shots, but I finally found one, but I mostly use my cardiologist who found the POTS and the stroke, and the dysautonomia, etc. Wish you well in figuring all of this out. Susie

On the forums page click on Journal and News releases, then you will find a list of topics on dysautonomia. There is one on MSA that I posted several months ago. I hope this will help.

Webgirl,

Are you based in the US? I ask because I know of a very good specialist for MSA in the UK. I'm currently hoping to get well enough to go see him.

There is also a good Trust set up to help support people with the condition again UK based but I can't remember the site address at the moment.

Of course this is all irrelvant if you aren't in the UK!

Becca

Hi Becc2004..haven't been on the web lately...no I live in the US, but thanks for your interest.

Thank you all for your input. We push on!!!

Hi webgirl...I am new to this site myself, but my step father has MSA. He was diagnosed about 3 years ago. I have found quite a bit of information from this website and a couple of others. They are http://www.wemove.org/msa and http://www.ninds.nih.gob/disorders/msa. Unfortunately, they all say basically the same. There is not much research on this. When was your partner diagnosed? What are the symptoms?

please explain more about the msa dx. i am very curiuos about it. i have had same prob finding info. google search with just msa has helped some. but hard to read and understand all medicla jargon. i would love to know about the symptoms they are going through. good luck to you both. and iam sorry it has happened to your freind. prayers are wiht you.

sandra,

Check out this website too.

http://www.emedicine.com/NEURO/topic671.htm

quote:

Originally posted by webgirl:
My partner has been diog.with MSA. Are any of you out there familar with this? ANY bit of info will be appreciated. Thanks...jp

Hi, I have been "sick" for 6 years plus and been diagnosed with MSA over a year ago. I am available online at anytime if you wish to find out more about it or just want to vent.
Michael Javazon