Go
New
Find
Notify
Tools
Reply
  
-star Rating Rate It!  Login/Join 
Posted
I was diagnosed with POTS about 9 months ago. I wasn't sure whether God existed but I sure hope he does because I need him to help me through this condition. I have come a long way in the past 9 months but I live in fear every day of dying. All the docs say this isn't life threatening but the symptoms feel so serious. I need to find God again so please pray both for my body and my spirit.
 
Posts: 15 | Location: California | Registered: January 02, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Smiler Hi there,
Just thought I would respond to let you know that you are not alone. Christ died for you, and if you have any doubts, search out His word.
This is a very frustrating illness because you look fine to those around, but we all know differently. I have had it for several years, and my faith has been challanged at times. The verse that helps me is "I can do all things through Christ who strengthens me" and it has gotten me through a lot. I believe that God answered my prayer of hopelessness by leading me to this site. These people are a great blessing, and they help you feel less alone. The Bible also tells us that fear is not of God. I too worried about it being life threatening, but after stress tests, bloodwork, and many bad episodes, I realized.....I'm still here! Maybe foggy, but here. How you use your illness is individual choice. I feel that God has a plan for all....if we just let Him work in our lives. This illness has opened many doors in which I can help people all over the world. If I am going to have to deal with this menace for the rest of my life....I intend to put it to good use. Hope this helps you. When you get scared, it only makes your symptoms worsen, so when things go wrong try to relax yourself and know that God is listening.
You will be in my prayers. suzq
feel free to PM me if you need a shoulder.
 
Posts: 210 | Registered: October 12, 2007Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I am praying for you. Please do not give up on God.. He has a plan for your life, sometimes we do not understand them, but he does.

I lived in a nursing home for a year, totally bed ridden, never left that room. I kept praying and never gave up, and I got to come home, and walk into my house for the first time.

My health now isn't very good, so many things wrong, but i cannot live without God in my life.

I want to support you..... la745773@mindspring.com thanks Lynn
 
Posts: 413 | Registered: June 25, 2006Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
how are you going? I am still praying for you.... hang in there with us...
your support friend, Lynn
 
Posts: 413 | Registered: June 25, 2006Reply With QuoteEdit or Delete MessageReport This Post
Picture of Laura34
Posted Hide Post
That is how I felt when I was first diagnosed with POTS I could not understand why me did I do something wrong? But I have learned to accept and take one day at a time! I was scared to death I was going to die and who would take care of my kids like I do! But with more research and web sites like this with other people to talk to I think you will be OK! I will pray for you and keep God in your life!
 
Posts: 77 | Location: Pennsylvania | Registered: February 17, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Please lean on God, use his strength and not your own... that is how I make it.... that doesn't mean I have all good days.... some days I cry wanted to be normal... Then I remember I am here on earth for God, so if he wants to use me for his purpose, I know it is for my own good. I am praying for you.. Hang in there, I honestly understand.....Lynn
 
Posts: 413 | Registered: June 25, 2006Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Ask God specifically that if he exists to show himself to you and I promise you that if you listen and look for him you will find him. He may not show you what you expected but you will see him the way he wants you to see him. He is a strong and big God. He is faithful to his promises. The Bible is filled with encouragement too. Ask God to speak to you thru his Word, The Bible and he will. Psalms is filled with people expressing real life pain and still praising the God who made them. It is filled with survivors. Ask God to take your fear away and he will.

Love, Smiles Smiler
 
Posts: 269 | Location: Phenix City, AL | Registered: February 18, 2007Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I will be praying for you as well. One thing that has helped me through my bad episodes is to think of what Christ suffered on the cross. If he could do that for me, then I can get through this. Granted, I didn't get to this point overnight - I went through the whole range of emotions. Anger at God, questioning "why me?", etc. But, I have to believe that God has a purpose for this illness - that's what gets me through.

I know how scary it is when symptoms flare up full force - it's hard to believe when our hearts are involved that it's not life-threatening. Each time I get through an episode with no life-threatening effects I get a little more confident that it's okay.....

Remember, we're all here for you - you will see the light at the end of the tunnel again.


"You can spend your life angry and bitter about what has happened, or you can go on from here and make a life worth living. Choose" - Captain Brien Thomas Collins, a Green Beret who lost an arm and a leg in Vietnam.
 
Posts: 456 | Location: Delaware | Registered: February 03, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
God will help you,, he has helped me a great deal..... brought me out of death last month. But I still have this dysautonomia, I make hope books for people to turn too with the right scripture they need to make it... I can make you one if you would like...my email is la745773@mindspring.com Lynn I made one for thor, she loved it....
 
Posts: 413 | Registered: June 25, 2006Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Just to let you know that I'm praying for you.

If you are seeking God you can be sure that He is seeking you.

'I sought the Lord, and afteward I knew
He moved my soul to seek Him, seeking me.
It was not I that found, O Saviour true,
No: I was found of thee.

'Thou didst reach forth thy hand and mine enfold,
I walked and sank not on the storm-tossed sea;
'Twas not so much that I on thee took hold
As thou, O Lord, on me.'

I know it's rather antiquated in language but I pray that you will know in your experience the 'walking and sinking not on the storm-tossed sea' because He is holding you up. God be with you.


I am no longer anything, yet only one thing am I: a clinging to the mercy of God. Augustine
 
Posts: 16 | Location: Indianapolis | Registered: May 01, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I have been sick for 20 years, I couldn't have made it this far without God. Just try and put it all in his hands.... Write down your fears, and pain, in an envelope and put on the outside to God. HE will listen and comfort you. Please don't give up on him, he has a purpose and a plan for those who know and love him.

In feb. this year My kidneys, and liver and bone marrow stopped working , the dr said I might not make it... A minister came and prayed with me, I was on oxygen, i felt so bad, and the next day everything started working, so I have felt God and I know he exists... He made us all special... Hang in there... Lynn
 
Posts: 413 | Registered: June 25, 2006Reply With QuoteEdit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  
 


The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.