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I will remember your daughter in my prayers, but tell her to not be so hard on herself. It is easy to become discouraged when the doctors don't have an answer. It is not her fault.
Everytime, I went to a doctor for my son and they didn't have answers, it felts like such a setback. I began to question everything and every flare. Then I want to dredge up everything all over again and start from the beginning. It is a major blow to one's sense of reality and self. That is why I said tell her to not be hard on herself. She will get beyond this doctor and when the answers/treatments actually begin to fall into place, this neurologist will be a distant memory. We have been through four already in the past year, and are looking for a fifth.
Don't give up even if you have to step back, regroup and start anew.
Take care,
Judi
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| Posts: 307 | Location: Baltimore, Maryland | Registered: January 15, 2008 |   |
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Tell Beth not to give up and believe in herself, she knows her body, most neurologist do not study dysautonomia. A cardiologist might be better able to help you. I went through the same thing, I was told by a neurologist it was all in my head, then I found three other cardiologist who diagnosed me with Dysautonomia. IT is important that you believe in her, my parents didn't and that seemed to make me worse. IF I can help my email is la745773@mindspring.com Lynn
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How is Beth? Any better? I am concerned.. Lynn
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