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Remember my daughter Beth in your prayers this week she is extremely discouraged and disheartened. She saw a neurologist yesterday who told her all her tests are negative and her seizure like episodes are from stress, so she should see a counselor. Beth promptly told him she already does see one and has been.

As a result Beth is very upset and discouraged. I am trying to get her an appointment with a doctor who use both western and holistic medicine.
 
Posts: 142 | Location: PA | Registered: June 23, 2006Edit or Delete MessageReport This Post
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Good luck. I can't understand some of these doctors. Well actually I do. It is all about the money (sadly). If they can move 30 people through with simple issues why work on 1 with a hard one. $$$

Anyway good luck. Tell her that if she knows something is wrong with her then forget about that doctor and find another. He is the one with the more serious issue not her.
 
Posts: 62 | Location: South Carolina | Registered: May 26, 2008Edit or Delete MessageReport This Post
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I will remember your daughter in my prayers, but tell her to not be so hard on herself. It is easy to become discouraged when the doctors don't have an answer. It is not her fault.

Everytime, I went to a doctor for my son and they didn't have answers, it felts like such a setback. I began to question everything and every flare. Then I want to dredge up everything all over again and start from the beginning. It is a major blow to one's sense of reality and self. That is why I said tell her to not be hard on herself. She will get beyond this doctor and when the answers/treatments actually begin to fall into place, this neurologist will be a distant memory. We have been through four already in the past year, and are looking for a fifth.

Don't give up even if you have to step back, regroup and start anew.

Take care,

Judi
 
Posts: 307 | Location: Baltimore, Maryland | Registered: January 15, 2008Edit or Delete MessageReport This Post
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Tell Beth not to give up and believe in herself, she knows her body, most neurologist do not study dysautonomia. A cardiologist might be better able to help you. I went through the same thing, I was told by a neurologist it was all in my head, then I found three other cardiologist who diagnosed me with Dysautonomia. IT is important that you believe in her, my parents didn't and that seemed to make me worse. IF I can help my email is la745773@mindspring.com Lynn
 
Posts: 434 | Registered: June 25, 2006Edit or Delete MessageReport This Post
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How is Beth? Any better? I am concerned.. Lynn
 
Posts: 434 | Registered: June 25, 2006Edit or Delete MessageReport This Post
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.