Hi to anyone who might be out there. I have never been on a chat room before so am very unsure about what I'm doing. I have to use text because my voice does not work well enough to keep up a conversation.
I was diagnosis with Multi system atrophy June of 2007 although I have had some symptoms starting as far back as Feb o 2004. I have been actively looking for a support group to share with for several month & just discovered this one hope there is someone out there to talk to.
Vi

Hi Cat Lady,
Sorry you have the need for support like this, but glad you found the site.

You may want to go to NDRF Forums and then click on Dysautonomia Talk and Newly Diagnosed. Those are great places to find other. People may not look under this heading...

Welcome!

Hi Joline;
Thx for answering my message, I'm not even sure this is the web I should be on, I googled support groups for MSA & it sent me here but other peoples messages seem to be talking about heart problems etc. Can't get to my dictionary right now and don't know what dysautonomia means.
Anyway yes it is very hard to come to terms with the fact that one is getting worse day by day and there is nothing anyone can do. I think it's even harder for my husband he just doesn't want to give up.
I'm on levodopa which is the usual for Parkinson's however it doesn't work very well with MSA but any help is better than none.
Thx again Vi

{{{{{Cat Lady}}}}}

Glad you found us.

SO sorry about the diagnoses.

You will find great support here and good information.Feel free to jump in at any time and just talk.take care.

Sheila

Dear cat lady,
I'm new to this ite too, but it has been a Godsend to me. You need to check out the chats. They are so liberating. Sorry to hear of your dx. There is much comfort to be found on this site. Keep in touch suzq

Welcome Cat lady...I have NINE babes myself Check out www.potsplace.com (lots of info there) read everything and you can be a better advocate for yourself. Hope this helps others as well.

Laurie