I was diagnosed in October of 2007. I am on a very low dose of Visken and it seems to be working.

Lately I have just been having bad days. Pounding in my ears, shortness of breath. Work seems almost torture.

I work in retail as a cashier and it requires me to be standing most of the day. So you can only figure how much that worsens the symptoms.

I don't know why I didn't research support groups sooner but I am glad I found this place. It's of some comfort to know I am not alone. No one around me understands.

I am glad you found this place too, and welcome, but sorry to hear about your diagnosis.

I think you will find this to be a good place for information and support. I look forward to getting to know you better.

I can only imagine how hard it is to stand most of the day. I would think it is a definite negative impact to your symptoms.

I wonder if your employer would be open to you sitting at the cash register. I know CA is pretty liberal with its laws protecting disabled persons. (we don't always qualify as disabled, but maybe they can make an accommodation?).

I'm done going to doctors for now, I seemed to find the remedies that work for me for now, then we'll see. Originally I went to MDs and emergency rooms for tachycardia. My heart would race up to 180b/min.I was put on Beta blockers, but felt more tired and short of breath, so tried to skip them. At the same time, I was battling migraines with different OTCs until I found Exedrin, it seems to help most of the time. I had halters and event monitors. I had an EP Study (the doc thought I had SVT), by the way, it was a real torture! Of course, nothing was found Then I went to another cardiologist, who, after his tests gave me a definition "Inappropriate Sinus Tachycardia" and "Dysautonomia" to look up and gave me PRN med, because I wouldn't agree to take something on a daily basis.I'm so glad I found this website and all the info, because it opened my eyes to a rational explanation for my symptoms.
Chris, I'm on my feet 12 hours a day, sometimes longer because of my job,but I'm in school to change that. Our health is more important. You think about it and maybe try to change your profession.

Hi again Chrissy and Hello Yanina

I am going to leave a link to my favorite article about Dysautonomias. There is a Chart. Try to find yourself on it. Print it out and hand it around. It sometimes helps.

http://tinyurl.com/2xua5x

Hope to see you around.

They don't let me sit. I am constantly moving. CA is pretty liberal though. They allow me to take breaks and the will send me to the stock room to calm down if I need to. Luckily there are a few people there who are considerate. I am in the process of looking for a new job. I've been stressed because this whole recession has cut hours in most retailers. I am also in the process of going back to school to finish my Bachelor's in business. So retail is flexible and convenient for me.

I wasn't diganosed here in the US. I did mention it to my doctor here but she always told me I was "too nervous" or probably "stressed". It pissed me off. No one took me seriously and I knew there was something wrong with me.

My parents got worried and through connections and friends I went to a cardiologist in Mexico. I got an EKG, a treadmill stress test and the table tilt test. During the table tild test I went up to 90% of my capacity which was 196 beats per minute. I didn't know my heart could beat that fast. Anyway, I went to the best hospital in the city. Might I add it was more affordable there. Not to mention it would have taken me a longer time to be refered to a specialist here in the states.

So as I said I was diagnosed with dysautonomia and NCS. I was told to have a higher sodium diet, leg excersizes and take the beta blockers. I've been doing okay though sometimes the medicine accelerates me. I feel pounding in my ears, my feet and hands get cold. I have days that go by fine and others when I feel like dying. But I push through.