Hi I am a new member, and reading Jayhawk's new posting. I am sorry for all your troubles and I am also glad to be among others who have these conditions.

I think doctors like to say that certain conditions don't exist, so they don't have to tell us that they don't know how to treat us! But also I think that there are good doctors out there who are willing to take us seriously.

For me, the two cardio guys I've seen both deny that MVPS exists. Isn't that interesting, since I've had my symptoms since I was a teenager!!

But of course I've been told by doctors that I'm just too sensitive. Too neurotic. Here, have some beta blockers, and some anti-anxiety drugs, and go see a shrink please.

Anyhow, my recent story is that my symptoms were pretty much under the radar until a cardio doctor gave me thyroxine for a nodule on my thyroid gland, and it induced hyperthyroidism.
Then, that doctor freaked out because I told him I thought I'd had a heart attack. I had a racing heart rate daily for about a month. He did a follow up T4/THS and pulled me off the thyroxine. A different doctor said my levels showed that I'd been given a toxic dose. I endured that toxic dose for 5 weeks.

So then I had about 12 hours of steady arrythmia each day, for the next 2 months. Beta blockers slowed down the beats, so I could more shockingly hear the missed beat followed by a banging thump. Over and over and over...
Interestingly, B vitamins have brought that symptom mainly under control, as long as I never eat meals.

Never eat meals? Yes, that's right, now I have to graze, eat throughout the day and night. My whole endocrine/autonomic system has been thrown out of whack. I still haven't found out if I have thyroid cancer, but that's another story.

But anyhow I can sometimes eat small meals, as long as I do so standing up! Try doing that in a restaurant!!

So. Thanks for having these postings for me to read. I am glad to be here.
I did some research on this a few years back, to self-diagnose. I never had too much problem with blood pressure, standing versus lying down blood volume or pressure... until now. Often my sleeping and dreaming will induce strange heart rhythms.

I bought a heart-math monitor, to learn to regulate my heart rhythm through bio-feedback. It's really showed me how my breathing patterns and thinking patterns affect my autonomic systems. So that's been interesting.

I also have pretty chronic fatigue now. I can work, but not much else.

I am adopted, and am wondering if there is a family history here. Do any of you know if your families have similar symptoms? I don't think everybody given a thyrotoxicosis develops the constellation of symptoms that I have. I had this before, it's just greatly pronounced now. I've always wondered how much of this is hereditary. I do have a prolapsed mitral valve, but I've also had trouble regulating sweating, tolerance to heat and cold, and racing heartrate while sleeping along with some arrythmia. And I do have some vertigo and motion sickness too.

Thanks.

Hey Tabarri,
I don't think the symptoms are very fun, but I appreciate your attempt at lightheartedness!

Have you been to an autonomic nervous system specialist? It sounds like you should seek one out.

Glad you're finding support here!

Ceravelo, thank you for your response. I think I should see an autonomic nervous system specialist. I would like to know a lot more about this, and will read the postings.

Thank you for supporting my light-hearted approach. I hope nobody reading my posting will think I am making light of these troubling symptoms!! I have read many postings here, and all of you amaze me with your courage and your knowledge. What a great group of people.

I am also interested in all the new research going on. It's wonderful to not have to think that this is all in my head. Twenty years ago when I had an onset of symptoms then, I don't think much was really known about this.