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I am a 50year old man who has been diagnosed with othostatic intolerance along with many other diagnosises. I have had this for 2 years now and been seeing my cardiologist and only trying me on pills, florinef , midodrine none of these have worked and i have been out of work for this long also because of my instability . Applying for ssd but got turned down and now in appeals Please help are there any other tretments for this. I hav e heard o having a pacemaker / difibulator implanted in my chest?
 
Posts: 2 | Registered: June 22, 2008Edit or Delete MessageReport This Post
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I do also have sleep apnea along with a back problem. I have a herniated disc at t-3 and t4 on the upper part of my spine that is pressing on my spinal cord the docs say any blow to the back could cause me to be paralyzed but do to the insurance companies they have to send me through physical therapy first. As far as the OI goes I have a EP cardiologist but she just keeps giving me pills that dont work.
 
Posts: 2 | Registered: June 22, 2008Edit or Delete MessageReport This Post
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Dizzy, I understand how you feel!!! IT seems you are on the right drugs. I too lost a good job with benefits because of the condition. IT wasn't till they said I was depressed because of my dysautonomia is why I ended up getting SS.
It was nice to meet you,hang in there! and know I undertstand your stuggles. Lynn
 
Posts: 435 | Registered: June 25, 2006Edit or Delete MessageReport This Post
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DIzzy , where are you from, I know my cardiologist could help you. It took me over a year to get on SSD. But, don't give up, you worked and are supose to get what you deserve. It is hard to loose a job over an illness, it was for me.
 
Posts: 435 | Registered: June 25, 2006Edit or Delete MessageReport This Post
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.