me again i just also wanted to ask, is it hard for everyone else out there that no one around you understands what your going through and how u feel? how everyone thinks u r just lazy? atleast thats how people treat me, yet iam the exact opposite! i love to be doing things and working and excercising, but iam a strong spirit stuck in a weak body that wont couperate! -also u guys will find out iam terrible at spelling lol. thanks for everyones posts about themselves, it helps me to relax alittle to know their r others out there coping with the same thing. i hope u guys all find lots of good days!!!

You're not alone. Today I felt like my mother was gonna tell me I was being lazy. So after a horrible struggle getting out of bed I vacuumed the whole apartment.

You'll see that we all get fatigued and unable to do even the smallest task. But we have good days. I've had some, though we end up paying for them later on. It just seems to be the trend.

I know what you mean. It's the old 'but you don't look sick'. I have the biggest issue at work where they see me doing things and think that I am fine but don't realize that one hour you can be fine and then an hour later you can be really bad. My Dad is also someone who finds it difficult to understand. If I am having a bad day he will say to me 'go out and do some things and you'll feel better'. He has the old attitude where if you have a medical condition and you are taking medication you should be fine.

Things changed somewhat when there was an article about OI in a magazine and they interviewed the former Yellow Wiggle as that's what he has. Now instead of telling people I have OI I just say that I have what the old yellow wiggle has and people seem to be more understanding.

Just hang in there and know that people are not being ignorant they just don't understand. I think that it would be hard for people to understand unless they have it themselves because even when you have it yourself you don't really understand it either....

thanks guys. i defenatly know about the good days. i do have them. i can go out and cut the grass and walk my dog ect,(except then iam beat for about the next week...) but then those bad days come out of no where and hit you like a tun of bricks. those days i can hardly get out of bed to feed my dog.. it makes me want to SCREAM. Sorry.. iam recomposing myself now.. yeah and i know no one is ever going to understand unless they were going through it themselves, but i wish they wouldnt be so judgemental you know?