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Hi, I'm 41 and just diagnosed with autonomic neuropathy. Mine is caused from the systemic lupus which I have had for 7 years. The cardiologist did a tilt-table test to confirm it. I'm wondering if anyone else is dealing with both AN/autonomic disfunction and lupus. If so how do you manage the multiple symptoms and tell which is flaring at any given time, since lupus can cause some of the same symptoms?
Thanks Cindbird |
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Hi Cindbird....
I don't have Lupus but wanted to say welcome. Maybe someone will stop by. If not, ask your question on the 'Dysautonomia Talk' section. It has more traffic. My best to you. Rosie Apnea means 'without breath'. Sleep Apnea excites the ANS. TX for Apnea calms the ANS. Click Here For Sleep Apnea Connection Thread Understanding Sleep Disordered Breathing Do not wait for leaders; do it alone, person to person. - Mother Teresa |
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I don't have lupus so I can't help with that part of symptom management. But I can help with the dysautonomia symptoms a little. Mine take a lot of management to try to figure out so I can keep going. I have to take special consideration on days I need to drive. It also helps having good friends to help as you need it. I have one special girlfriend and her husband who are there when I need kids picked up and are great people. My husband is supportive. Good luck!
michelle |
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Hi - I am also new to the site. I too have systemic lupus as well as sjogren's syndrome. I have had lupus since 1987 and had several of my symptoms attributed to both the lupus and the sjogrens. Feel free to contact me anytime.
Hope this Helps, Heather |
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i am also new to the site hi all! i have multiple sclerosis and have had it since my third trimester in 2005. Recently I saw an MS specialist and he seems to think I have sjogrens syndrome. i am very confused and worried about this as i may have been misdiagnosed for almost 4 years and the damage is done. I have severe neurological impairment and also severe urinary problems. If anyone has any info pleasee let me know. I also have a ton of dental cavities in my mouth due to dry mouth.
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided.
Medical questions and information, should be reviewed with your physician.
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Last modified: Saturday June 10, 2006.