Hi all. Just wanted to introduce myself.

I was just diagnosed with MVPS/D a couple of months ago. I have been sick most of my life. I have never had energy that I can remember. I have always hated to exercise. I was called "lazy" most of my childhood.

I was tentatively diagnosed with CFS about 15 years ago. I was just never convinced. I was also diagnosed with major depression soon after. That was a hard pill to swallow, but I now know that I DO in fact have clinical depression. It's not a "of course Im depressed, who wouldn't be with all these health problems" situation. It's a genetic biological disorder. But it doesn't account for everything.

In my own research through the years I have determined that it must be my autonomic nervous system that is malfunctioning. But I didn't know there was an actual diagnoses to go along with it.

My sleep doctor told me that he thinks I have dysautonomia, my sister was told around the same time that she has dysautonomia. She did a search and found that there is a doctor here who specializes in it.

So we had back to back appts.

This really rings true. Mostly the exercise intolerance. All these years of pushing to keep up a regular exercise schedule only to get sicker and sicker.

The doctor said that I still have the major depression and sleep disorders. I asked how they are related, she said they dont know how, but they just know that they are.

My vitamin D was so low it didnt' even register. So for now I am trying light aerobics, forcing fluids, avoiding caffein and sugar (somewhat), and massive Vit. D doses.

Look forward to "meeting" all of you and commisserating.

eeyore

Eeyore,
Welcome - I'm glad you found us but sorry you have to be here. Hopefully you will find lots of support and good information here.

Hi Eeyore,

Welcome - I too have been trying to avoid sugar..LOL. At least limiting it and I found that when I 'overdosed' on sugar it truly made me dizzy so I guess that justifies having to limit it.

I also had very low Vit D - measured at 10. But with supplements it went back into the low normal range within a week.

For me, fluids, beta blocker, light exercise, and changing my diet a bit has all helped me improve. I hope it does for you too.

Hey and Welcome!

I do 15 minutes of sunshine and a vit D/calcium/magnesium supplement daily. Both help quite a bit.

Extra salt is good too.

If you are near milwaukee consider the July 2nd meeting further down this page.

Hi all! Thank you for your response. I am ashamed to say I completely forgot that I had joined and posted on this board. How sad is that. My memory and other cognitive functions aren't really great lately.

The only reason I found out is because I did a googl search that led me to a thread on this forum.

As I was reading I noticed it said "Welcome Eeyore" lol

I was like "what? How does it know who I am?" lol

Oh well, I somewhat remember posting this.

In reply, my first sleep study was done well after I started treatment for the clinical depression. it showed no apnea problems. My more recent sleep study showed mild to moderate apnea as well as Idiopathic Hypersomnia and possible RLS.

The only differences in the physical exam before the recent study was 20 extra pounds, and a blah blah blah index of 3 upon examination of my throat. Which means "in laymens terms" there was alot of extra tissue.

I have often felt like I just kept decongestion at the top of my throat because it always feels heavy.

Im scheduled for a CPAP titration in a month or so.

I also have a cousin who has been diagnosed with dysautonomia but isn't doing anything about it. My sister is stuck on the CFS diagnosis and has gotten involved in activism somewhat.

Im just tired. lol

eeyore