Hey, I'm Sabina, I'm 18, and I'm new around here =/
I have a question that may be totally stupid, but...

Earlier this year, I went to the cardiologist and he told me that due to a flawed nervous system, when I stand or sit up, blood pools in my feet instead of staying balanced throughout my system and my heart would have to work harder to get blood back to my brain. He diagnosed me with Dysautonomia - Neurocardiogenic Syncope, but said that my heart was handling it fine, that I didn't need any meds, and left it at that.
About a week ago, I went to the neurologist, because my mother was worried I might have had a tumor. I'd been having extreme headaches everyday, vision and memory problems, etc.
And he diagnosed me with Dsyautonomia too, but POTS...

How exactly are POTS and Neurocardiogenic syncope related? I looked it up, but different sources have different answers..
Is Neurocardiogenic syncope a cause stemming off of POTS? Do they go hand in hand in some cases? Or do they hold no correlation?

=/

Hey Sabina, welcome to this forum!

My son is 17, and he was diagnosed with POTS about 2 years ago. Most people with POTS have migraine headaches, usually due to not having proper signals for the blood to get back up to the brain. It's a vicious circle.

I'm not well versed in NCS, but I know that with POTS, dehydration is a major factor that makes symptoms worse. My son has to drink 1 gallon of fluids a day (it's not easy) and talk salt tablets. He is SOOO much better when he does drink that much. His doctor explains it that his heart is racing so hard due to mixed signals from his nervous system, and that his blood volume is lower than normal, making it twice as hard on his heart. When he drinks more fluids along with taking in more salt to retain the fluids, it's easier for the blood to flow to the places is should (despite the mixed signals your body is getting, sending, etc) Does that make sense?

A website that has helped my son, and understanding of teens with POTS or NCS
www.dynakids.org it also has articles for those entering college, and how to deal with the school system, etc.

You'll find very nice people on this forum that have lots of experience to help answer your questions.

My son IS taking some medication to help with his symptoms, and along with extra fluids, he's better. His vision and memory problems subside when he drinks like a fish....it's weird, but true.

Hi Stella. Sorry to hear about your diagnosis. I have Dys and NCS. Headaches are a common symptom. I sometimes get week-long migraines. Yours may be dys related as the blood flow to your brain is not normal due to the NCS. However if you get abnormal headaches with other symptoms it's good to check it out just in case. We're here to help. If you have a myspace look up my group United And Living with Dysautonomia. Feel free to add it and ask questions. There are groups on facebook too.

hi, welcome
sorry to hear about your diagnosis. my personal experience is that my doctors didn't seem too concerned about what kind of dysautonomia i have, they just wanted to acknowledge that i have a dysautonomia. i am more recently diagnosed as well, and some of my doctors refer to my conditon as ncs, and others as pots. after doing a lot of self-research, i am inclined to think i have pots. but unfortunately, as many of us have learned, not many medical professonials are versed in the understanding of dysautonomia. you may want to check around your area for a specialist. i am still seeking one for myself
if you have any questions, you may want to post on the main forum. there are a lot more people there.