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I'm happy for you all to have found your answers at the Mayo clinic. I am the exception. I left NC to go to Rochester MN and knew little more when I was finished than I did when I got there!
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I, too am really glad you found some answers at Mayo. I was actually diagnosed with Dysautomia last May by this kooky doctor who gave me my diagn's. on s sticky note!! I never really got any answers & it's been such a frustering year. When I think back from2002, all the crazy disorders I have had now make sense - the swallowing issues, my irregular heart beat, my bowel obstruction, being in kidney failure (right out of the blue) with a BP at that time of 60/29, the horrible sweating episodes with ice cold arms in the middle of the winter. my extreme BP 200/138 then swinging back down to 70/30, passing out, the horrrible symptoms I get when it's dropping (I get this awful sensation in my head. This is quickly followed by breahing very hard & deep, hearing a roaring sounnd in my ears, losing my hearing, seeing black spots, then becoming totally blind before I pass out. All this happens in this order & happens often. . I'm going to a new Neurologist at George Washington University Hospital in Washington, D.C. I'm still at the diagnosing stage. Newt week he wants to do NCS and EMG's on 2 nerves to give me a final cause for this (if there is one). I'm really scared! This first Dr. did all the right tests, but never did any follow up or give me a name for what I have, therefore I have had no treatment at all for the past year. Thanks for listening to me. I know this sounds like a book, but I am SO glad to have found you guys. Sandy
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| Posts: 8 | Location: Waldorf, Maryland | Registered: July 29, 2008 |   |
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