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so im here and have had alot of testing done in the cardiology unit, and autonomic testing, the verdict came in today. the tests reveal that my heart is fine, but my autonomic tests were abnormal.

so there it is in black n white, thats what has been causing NCS. Dr. Hammil called the desk of DR. Low and confirmed the diagnosis and got me an appt for the morning for a consult. i absolutly love it here! i would recommed this place to anyone who wants answers fast from very knowledgable Drs.
 
Posts: 83 | Location: arkansas | Registered: May 07, 2008Edit or Delete MessageReport This Post
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glad things are going good at mayo. I spent three weeks there for a pain rehab clinic for my fibromyalgia, and was also diagnoised there myself. If you have time go to the shopping center where Target is and across the street is Cold Stone Creamery...treat yourself to some good ice cream it is fun and tastes great!! I went there after my diagnosis cause I was so happy to finally know what was going on after such a long time of not knowing.
 
Posts: 2 | Location: Milford, IA | Registered: July 12, 2006Edit or Delete MessageReport This Post
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Congratulations on getting good medical services. I have to agree - Mayo is the best (I went to AZ).

And it makes such a difference to our mentality when we feel our doctors are knowledgeable and supportive....it alleviates alot of stress and struggles and lets us focus on just treating our illnesses rather than wasting energy finding doctors who understand our illnesses.

Good luck with the rest of your appts.
 
Posts: 353 | Location: Henderson, NV | Registered: March 19, 2008Edit or Delete MessageReport This Post
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I'm happy for you all to have found your answers at the Mayo clinic. I am the exception. I left NC to go to Rochester MN and knew little more when I was finished than I did when I got there!
 
Posts: 5 | Registered: July 29, 2008Edit or Delete MessageReport This Post
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I, too am really glad you found some answers at Mayo. I was actually diagnosed with Dysautomia last May by this kooky doctor who gave me my diagn's. on s sticky note!! I never really got any answers & it's been such a frustering year. When I think back from2002, all the crazy disorders I have had now make sense - the swallowing issues, my irregular heart beat, my bowel obstruction, being in kidney failure (right out of the blue) with a BP at that time of 60/29, the horrible sweating episodes with ice cold arms in the middle of the winter. my extreme BP 200/138 then swinging back down to 70/30, passing out, the horrrible symptoms I get when it's dropping (I get this awful sensation in my head. This is quickly followed by breahing very hard & deep, hearing a roaring sounnd in my ears, losing my hearing, seeing black spots, then becoming totally blind before I pass out. All this happens in this order & happens often. . I'm going to a new Neurologist at George Washington University Hospital in Washington, D.C. I'm still at the diagnosing stage. Newt week he wants to do NCS and EMG's on 2 nerves to give me a final cause for this (if there is one). I'm really scared! This first Dr. did all the right tests, but never did any follow up or give me a name for what I have, therefore I have had no treatment at all for the past year. Thanks for listening to me. I know this sounds like a book, but I am SO glad to have found you guys. Sandy
 
Posts: 8 | Location: Waldorf, Maryland | Registered: July 29, 2008Edit or Delete MessageReport This Post
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.