Hello. I am 34 years old, and I have a venous malformation diagnosed as Klippel-Trenaunay-Weber syndrome on my right leg. A few years ago, I was diagnosed with Anxiety and Panic attacks, due to my fast heart rate, lightheadedness, etc. I recently discovered Orthostatic Intolerance, and due to my preexisting condition, I really think that this is what I have. My blood pressure and heart rate significantly vary when standing up. I have been to a cardiologist who tends to agree. I have had an echocardiogram performed and my heart is fine. I was wondering if anyone knows of a specialist in the San Francisco Bay Area. Any leads would be greatly appreciated.

Thanks





Thanks

Hello~
I'm new here but my daughter (17)has been referred to the Comprehensive Medical Center in Kirkland, WA for dysautonomia (she has many other health issues along with this though). Her PCP here in NC feels they are the best equipped to help her, however appointments (with the doctor recommended there)are 4 to 6 months out.

Hope you feel better and can find some answers soon!!

Karen Friday at Stanford knows a lot about POTS. She only works one day a week.

Thank you very much!

-ACC

Hi My daughter was recently diagnosed with POTS and I am trying to find a specialist on West Coast too. I ran across Karen Friday on another site and was going to call Ashley's cardiologist tomorrow with the name & number to see what he can do since he is at the end of medication regimen and not sure what else he can do to help her at this point. It has been almost 10 months since she has been able to sit up or function....