Does anyone have advice on meds that help you from feeling so off mentally and balance wise?
I have tried fluid, salt,Cerefolin, Midodrine, Flornicef, Toprol, Mestinon.
This is pretty horrible and a really poor quality of life since I got this post viral case of Pots. I am hypovolumic. I feel like most of the day I am in a daze, so hard to concentrate, I am always spacing out. It feels like my blood sugar is low, but it is not.
The feeling of fullness in my head is awful. Like I have 2 heads

Hugs. Maybe you need a stimulant or other drug for neurotransmitters?

Hey!!... Many people on this forum would disagree with me but I take adderall every day.. and has helped me so much. With my energy, concentration, dazing, everything... It does wonders.... Maybe you could try it.. but others would disagree!!...

Have you tried IV fluids? I've read that it helps some on this site. May be worth discussing with your doc.

Hugs!

For the last four years or so I was on Toprol, Florinef, Flecainde (an anti-arrythmic). I was taken off of them early this year because of the neurological side effects I developed. I had no idea how much those drugs were causing my brain fog. I felt like I was moving through quicksand all the time. My head was full of pressure, I was always dizzy and I never felt clear. Granted, my pots can certainly cause these problems when I flare up but since I've been off of those drugs, I am so clear-headed. Unless I am flared up, I don't feel nearly as loopy or out of it. I am now on a calcium channel blocker which is helping my symptoms without causing the nasty side effects. I have to drink alot of water and still eat salty foods frequently. I do have problems when I eat too much salt. I think that's a challenge for us. If I eat too much salt, my vertigo is awful and I am extremely dizzy. It's a balancing act to find the right level of salt and water without making things worse. Meds are a necessary evil but sometimes cause more problems than they treat. It's all trial and error - I wish you luck.

Salt is problematic for me. Too little and I'm more 'potsy' and too much and my migraine will go off the charts.

I understand the chronic feel of being off. I haven't had even a few hours when I've felt 'well' for many months now. I do have a few moments here and there and they are wonderful. It's usually when I'm distracted from 'stuff' and am contemplating something beautiful -- scenery, artwork, or something very interesting like a beautiful passage from a book. These are the times I feel normal -- when beauty transcends this illness.

Last night I was looking after my grandson with my partner. It was bathtime and grandson was acting a bit naughty (he'd had a long day) and I was trying to get his clothes off him to get him ready for a bath. He didn't want to get undressed so I turned it into a game. 'pretended' to fight with him -- we 'fought' about taking off each article of his clothing and by the time we got to his nappy he was laughing. During that time I used up a lot of energy and was not aware of it -- afterwards I was very aware though. But in the moment -- enjoying and playing with my grandson in the rough way he likes -- I didn't feel one bit sick. Amazing how very good experiences CAN let us transcend this 'junk' at times.