What type of doctor is best to diagnose dysautonomia? An internal med doc? Neuro? I have a host of autonomic issues and my daughter is now starting to have problems with tachycardia. She has had fatigue issues for quite some time, and she also has Polycystic Ovarian Syndrome (as I have had in the past, also, but am not symptomatic with it now).

Thanks
Ramona

my suggestion would be a cardiologist, request a Tilt Table Test and go from there.

I saw a neuro who ran all sorts of tests on me and then after 1+ yrs did cardio tests (holter and echo). After getting the results he referred me to a cardio/ep who did a TTT and I got the diagnosis. The holter showed the tachy and it was thru the TTT that it was found to be IST.

hugs

i was also diagnosed officially by a cardio, but my internist has been the best doctor in assisting me. my experience has me believe that it doesn't really matter which kind of doctor you see, as long as your doctor is compassionate, patient and willing to learn. my neurologist and endocrinologist were a waste of my co-pay, and my cardio was not interested in learning more about pots and assisting with any symptoms that a beta blocker couldn't mitigate.

I was diagnosed by my endochronologist--but only because his wife also has this. Then he dumped me 'cause he didn't want to deal with all the med alergies and odd effects I now have.

I have been led to believe since that they are "supposed" to be the ones to handle this. But so few know much I think it's all about finding someone who is familiar with ANS problems--no matter what specialty they are.

I saw a cardiologist who initially diagnosed me with Orthostatic Hypotension, and then a neurologist who suggested the dys. Armed with some research, I went back and saw the cardio, had some more tests run and was diagnosed with NCS and dys. I have sent all of my labs, MRI's, CAT Scans, and doctors reports to the Cleveland Clinic. They have a Remote 2nd Opinion Service where they review everything and come back with a diagnosis and treatment options. I should have it back on Thursday next week. Since my docs here are by no means specialists, they see this as a way that they can treat me more effectively. Hopefully it is useful.