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Picture of gillian (g33)
Posted
Sorry, I know this subject has come up before but I can't remember if it ever got responded to or what....figured I may as well do a fresh one. I'm on myspace and was hoping anyone else on here that uses that social networking site would post their url from there or give their name or what have you so we can connect. I have a list of friends but only 1 or 2 of them are Dys patients and I'd like to have more folks on there that actually understand this illness! Either PM me or post your myspace here or whatever you'd like, and I'll go ahead and PM anyone who responds with my myspace info too. Thanks, hope to see some Dys pals on there!

Gillian
 
Posts: 326 | Registered: September 01, 2006Edit or Delete MessageReport This Post
Picture of WickedChrissy
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www.myspace.com/chrissyg

anyone here is free to add me as long as they let me know they are from ndrf and also join the group i have on there "united and living with dysautonomia"

This message has been edited. Last edited by: WickedChrissy,
 
Posts: 160 | Location: CA | Registered: April 16, 2008Edit or Delete MessageReport This Post
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I am on myspace as well. My url is www.myspace.com/blueeyedmisty anyone can add me if you like. I do not have my page marked private anymore but all my pictures and blogs are for friends only. So once you request me as a friend just tell me you are from here and I will add you, you will be able to see those things as well.
 
Posts: 174 | Location: Tampa Florida | Registered: July 08, 2008Edit or Delete MessageReport This Post
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www.myspace.com/genevievex

I'm rarely on myspace these days though but I do check it from time to time.
 
Posts: 1491 | Location: Los Angeles, CA | Registered: February 12, 2007Edit or Delete MessageReport This Post
Picture of Ms Dino
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http://www.myspace.com/wendeno

Feel free to request me as a friend, just let me know your from NDRF forums.

Thanks~Wendy
 
Posts: 27 | Location: CT | Registered: April 11, 2008Edit or Delete MessageReport This Post
Picture of WickedChrissy
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wendy in order to request you we need your last name or email. if not we can't send it.
 
Posts: 160 | Location: CA | Registered: April 16, 2008Edit or Delete MessageReport This Post
Picture of Canada
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No but I'm on facebook....anyone else?
 
Posts: 432 | Location: Ottawa, Canada | Registered: March 08, 2008Edit or Delete MessageReport This Post
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I am on MySpace at http://www.myspace.com/lmv0813

Lynn
 
Posts: 113 | Location: Wisconsin | Registered: February 27, 2007Edit or Delete MessageReport This Post
Picture of gillian (g33)
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Posts: 326 | Registered: September 01, 2006Edit or Delete MessageReport This Post
Picture of WickedChrissy
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Lynn and Wendy I am unable to add you since I need either your email address or last name to send out the request.

I am on facebook too. Find me under Chrissy Godinez network Cal State LA
 
Posts: 160 | Location: CA | Registered: April 16, 2008Edit or Delete MessageReport This Post
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This is a nice idea, here's my page http://www.myspace.com/made2model
Just let me know you're from this site.
 
Posts: 30 | Location: Georgia | Registered: July 14, 2008Edit or Delete MessageReport This Post
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I must say. We are some fine looking bittches.
 
Posts: 1491 | Location: Los Angeles, CA | Registered: February 12, 2007Edit or Delete MessageReport This Post
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Chris,

I sent you a friend request...
 
Posts: 113 | Location: Wisconsin | Registered: February 27, 2007Edit or Delete MessageReport This Post
Picture of WickedChrissy
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quote:
Originally posted by nitekitty:
I must say. We are some fine looking bittches.


hahaha fine looking biotches too?
 
Posts: 160 | Location: CA | Registered: April 16, 2008Edit or Delete MessageReport This Post
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quote:
Originally posted by nitekitty:
I must say. We are some fine looking bittches.


LMAO! You got that right! We make this disorder look good!
 
Posts: 30 | Location: Georgia | Registered: July 14, 2008Edit or Delete MessageReport This Post
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.