Sorry, I know this subject has come up before but I can't remember if it ever got responded to or what....figured I may as well do a fresh one. I'm on myspace and was hoping anyone else on here that uses that social networking site would post their url from there or give their name or what have you so we can connect. I have a list of friends but only 1 or 2 of them are Dys patients and I'd like to have more folks on there that actually understand this illness! Either PM me or post your myspace here or whatever you'd like, and I'll go ahead and PM anyone who responds with my myspace info too. Thanks, hope to see some Dys pals on there!
anyone here is free to add me as long as they let me know they are from ndrf and also join the group i have on there "united and living with dysautonomia"
This message has been edited. Last edited by: WickedChrissy,
Posts: 160 | Location: CA | Registered: April 16, 2008
I am on myspace as well. My url is www.myspace.com/blueeyedmisty anyone can add me if you like. I do not have my page marked private anymore but all my pictures and blogs are for friends only. So once you request me as a friend just tell me you are from here and I will add you, you will be able to see those things as well.
Posts: 174 | Location: Tampa Florida | Registered: July 08, 2008