NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  NDRF General Discussion  Hop To Forums  Dysautonomia Talk    LOOKING FOR DYSAUTONOMIA SPECIALIST IN IOWA OR CLOSE

Closed Topic Closed
Go
New
Find
Notify
Tools
-star Rating Rate It!  Login/Join 
Picture of DizzyBrunette
Posted
I'm looking to get another opinion about my condition. Any suggestions of specialists that might be in Iowa or close? I would be willing to go to Chicago, Mayo Rochester, Cleveland Clinic, Vanderbilt. Please share ideas. I would really appreciate it. My current doc seems very "conservative", rarely does testing, is an internal med doc with subspecialty in complementary medicine but I think I really need to see a specialist for dysautonomia. I was diagnosed with NMS many years ago through a consult with EP/Cardio dept at a medical university teaching hospital. They just seem extremely "conservative" and I feel like they "blow me off". No real suggestions outside of drink water, ted hose, try to exercise. Thanks in advance for your input. I REALLY want to feel better if at all possible!
 
Posts: 140 | Location: Midwest USA | Registered: March 02, 2007Edit or Delete MessageReport This Post
Posted Hide Post
well you have pretty much listed the possiblities, start by trying to get into the closest ones first. try more than one at a time, and take the first avaliable appt, which could be mths away. i live in arkansas but went to mayo, thier appts are usually 3-4 mths out, but vandy is booking into 2009. just start now, the soon the better.
 
Posts: 83 | Location: arkansas | Registered: May 07, 2008Edit or Delete MessageReport This Post
Posted Hide Post
I got an appointment at the Cleveland Clinic that was only 3 weeks out. I actually leave next Thursday and will be there until Tuesday the 26th. Everyone I have talked to says they are wonderful and the docs I am seeing are great. I will let you know how it goes.
 
Posts: 64 | Location: Tucson AZ | Registered: June 27, 2008Edit or Delete MessageReport This Post
mo
Posted Hide Post
What doctor are you seeing at Cleveland Clinic? I have gone there for four years!
 
Posts: 3 | Registered: July 24, 2008Edit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  

Closed Topic Closed

NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  NDRF General Discussion  Hop To Forums  Dysautonomia Talk    LOOKING FOR DYSAUTONOMIA SPECIALIST IN IOWA OR CLOSE

The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.