Ok fine, here it is! I am angry... not anxious... angry at doctors... angry at my body... angry at what in the world I am suppose to do with all these symptoms!

Hyperadrenergic POTS is a horrible name. Here are my new ideas:

remitting relapsing -MSA or -PAF (minus for too much instead of too little neurotransmitters)
remitting relapsing autonomic dysfuction (RRAD)
anything can go wrong disease
NE dumping disease (NEDD)
Stump ER doctors and nurses disease
The patient is the expert disease
Earn an honorable MD degree disease

This is fun!!!! I feel so much better.

Any other ideas for alternative names?

how about:
the internal hell disease
uncontrollable body disease
the never been studied in med school disease
if you want to feel like your on drugs all the time and your not disease

How about - Are you having problems at home disease? You just need something to calm you down disease? Research your own disease?

I agree with Sandra - it is an internal hell disease. No one understands what we have, i've been isolated by everyone - all so called friends are gone - doctors are baffled. I can't move or walk anymore much less type...I'm so over it. I love "Me" but I hate what I have to deal with. Maribel

The Sympathetic Nod I Have No Idea How to Deal with You Now Disease

The "Oh I am so sorry girl" Disease

Let's try the "I have never had such a difficult patient as you disease!" That's been my favorite so far.

the "let me refer you to someone else..." disease
or the "how about you just try to eliminate some stress" disease
or the "let's just call it panic attack disorder" disease

I cannot sleep tonight and thinking about ER... so many symptoms... it is unreal...

thanks for all the replies!

'would you be open to taking medication for your anxiety while i ignore your medical issue' disease

My favorite is: "But you don't look sick" disease! Of course, I try really hard not to look sick. On occasion though all my efforts are in vain and then the doctor says, "Oh my GOSH! You are really sick!" WHATEVER!

That's the thing, we don't usually look sick. We get an avalanche of symptoms and we know we feel them but others don't see the proof.

The "I think you're faking it" disease

It blows that only when we are on the floor passed out or semi-seizing that people say "Oh wow you a really are sick." No S#*t Sherlock! No I'm not sick, I just find it fun not being able to breathe and having my chest feel like it's splitting in half.

Okay sorry I vented there a little.

Here's one my doctor actually said. "So your pretty much screwed disease!" That basically summed up her view on this illness

HAHAHA! It's funny cuz it's true.

Get this, I was at my Disability hearing yesterday and this so-called shrink and stated that this is all in my head!!!!! I exploded in the court room and told them, do you honestly think I want to be ill like this????? There is no protocol or treatment for this condition. Everyone thinks I'm nuts (except my neurologist, pulmonary and primary care physician) - one shrink thinks that saw me twice gave that conclusion. I called her office and told her medical assistant off (but in a tactful way) - to have that shrink call me back so that I can give her a piece of my mind. How dare this so-call physicians state otherwise???? They should research the problem if they come across a patient like us instead of calling it a psychological disorder. I have severe tremors - I was a paralegal and publicist and cant do my job anymore. I'm trying and no money and lost everything. The disability look favorable for me but it just angers me when people come to these conclusions. My EP Doc is an idiot and i'm switching after 3 years. He has NO idea what to do with this condition while in fact, my other physicians are SHOCKED at his prognosis. This EP MISDIAGNOSED me and he's afraid of a lawsuit well, he's playing with the wrong chick. I have tremors and gotta stop typing. Also, if there is nothing wrong with me, why does my EP doc put me on Flecanaide which is for Atrial Fib and atrial tachycardia which i constantly have. Also, I have a severe right bundle branch block, left ventricular hypertrophy, mitral valve prolapse and mitral regurgitation along with the Autonomic Central Nervous Dysfunction aka Neurocardiogenic Syncope. I faint and fall 3 times a month, bruises everwhere, I go to the hospital and they have to do a pic-line because my veins are blown. It's just ridiculous!

Thanks for hearing me out. I'm just so angry and by the way, I yelled at the judge (tactfully) but he got my point.

You guys crack me up. I can't think of a name. So many good ones have already been said!

Maribel---
I am right there with ya! I totally understand your anger.