Ok so I hear you guys--I need to be a bit more assertive about my requests.

But I think if you knew me you'd laugh.

Me? Lacking the ability to "throw down" when needed. Surely you jest!!

But this "thing" does odd stuff to us--esp when it goes on for years untreated like this. And you guys are right--I've become a bit of a candy a## about it all--probably because I'm down to the LAST Endo doc within 100 miles!

There are just so FEW docs around here in Cape Coral Fl--and even fewer that aren't--well--half -retired--closed practice--cash only practice--and/or just plain--Give a S##T.

And I have been dumped by a couple of these guys already--even while being nice and trying NOT to call or ask for much.

So I guess I'm REALLY trying to hold on the what litle help I have.

But you're right. I too need to pull up my big girl panties and get serious! If it's to be it IS up to me!!!

Thanks for the pep talk guys!

GRRRR!!!!

Look out doctors of Cape Coral--I'm ready to get my way or make you pay!!!!
<stomping foot>

Wow, I have to print this out. U know what I did? I saw the title of this post and thought, "WOW, I have that too!" Then, I saw I started the thread. Okay, it is that bad, and I am so tired and it is 2 45 AM. So, I will read it tomorrow. THANKS EVERYONE!

This won't be long. Had one of those lovely nights when I woke up wide awake my adrenlin system pumping away like crazy - at 2:00 a.m. At 3:30 I gave up on sleep and did some laundry. Went back to bed at 5:00, just about drifted off & my kitties decided it was breakfast time. Now I have to make it thru work today. This is one of the worst - one of those days when you can't even make your eyes, much less your brain, focus.

But here's a good sense of time:has it changed for u? Driving, though I have to do it, scares me to death. I don't know whether it's the disease or the meds or a combo of both, but do you have those moments when, like any normal person, you look away from the road (like at a tree, a sign, whatever) for a "split second" only to find the guy in front of you is coming to a dead stop at a traffic light! ACK! How long has your mind been gone? Hard as I try I find it almost impossible to keep my attention from wondering hither and yon.

I guess if I can still say hither and yon I'm not completely lost.

Would y'all please pray for me? (what the Buddhist's call a "fast money prayer") because on top of everything else, I found out something's wrong with my transmission. I got NO extra money and am trying desperately to save as much as possible for when I file for disability.

Thanks for being here, everybody.

quote:

Originally posted by Neshema1:
Wow, I have to print this out. U know what I did? I saw the title of this post and thought, "WOW, I have that too!" Then, I saw I started the thread.

Hey nesh,

I've done exactly that myself. LOL.

Elsa & Blue

I miss you both. Many of u seem to "get it." I went from impeccably organized to not know what month it is.I can't find anything. I get very flustered. I talk about 5 things at once, and yesterday was to final nail in the coffin. I listened to 3 weeks of voodoo therapy (he seems to have done all he can), and noticed I told the same stories 3 weeks without him pointing it out to me that I need neuro. Sure, he will sit there and take my money. I am a psychologsit who doesn't ahave much faith in therapy. I chose to go. He changed my life at first. Now I need to be trained like Pavlov's dogs. I had plans to go out of town this fri and sat, then suddenly thought it was Mon and Tues. It was Fri. I could not for the life of me remember my therapy appt time. Avoidance? I am going to see Barboi, a nuero in milwaukee, specializes in dysautonomia. I think he wasnt to repeat my mayo tests.Elsa. I know...I feel I have no choice.Good news is we got a new dept head, and had him before. He was the best. So, I think that might make life easier. he even drives me to appts across campus. Elsa, honestly, I don't know if I can go back for fall semester. I cannot take all this anymore. Oh, I can get an appt at Vandy in Sept 2009! I just can't take it all right now. the depression may be from my barely traceable Vit D. I finally found an endocrinilogist who does her job and even checks on me. I am going for a parathyroid scan and another bone density. I have anemia. I have..u name it. Yeah, Else u have been right, but I don't know what to do about it.

I'm gonna beat this drum til the sucker explodes!!!<chuckles>

Please read these links!<down on knees begging!>

http://www.vitamindcouncil.org/bestNewsArticles.shtml

Please treat your Vitamin D if you know it is low. NOW! Today! Go out it the sun for 30 minutes--if it's too hot you can get it at the drug store--it's cheap--there really is NO EXCUSE! It WILL help your mood--your pain--your immunity!

FYI Vit D works best if combined with calcium and magnesium--zinc doesn't hurt either. But often if comes this way anyway!

B-12 will help your energy levels too! If you haven't been tested why not??? Lower blood volume IS caused by b-12 def!!!
http://www.aolhealth.com/conditions/vitamin-b12-deficiency?flv=1

Get tested--get some vitamins--and help your body cope with this and get better!

<stomping foot on soapbox this time!>

Guys there's so little we CAN do about so much with this stuff. We MUST do what IS possible! Life is short!!!

As always I hope this helps someone!

Glad to see you on line again Nesh. I have a total loss of time. I have lost whole days, and once 8 days. I have reached the point that I know I need to do what is right for me. I can't drive any more, and if I push it my md will have the DMV take my license. All the people who are important to me know what the problem is(in general) and are open for just about anything that happens with me. After all, I DO occasionally have lucid moments. I have to work harder at them, but they are there.
My best to you, and hope this eases up some soon for you.