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tazaza	Posted Is there anyone else here with POTs in the UK? I've found it so difficult trying to get in contact with anyone that could be living near to me!There is no research or information about POTs in this country!
	Posts: 114 | Location: UK | Registered: May 09, 2008

Elsa	Posted Hide Post We have had several people on the forum from the UK over the years. There is a specialist in autonomic dysfunction who is very well known. I believe he is in London. Maybe some one else will remember his name. I also think there is an organiation that is helpful. I will do some checking around for you. Take care and be assured that someone here will be able to help. Elsa
	Posts: 252 | Location: Southern California | Registered: June 23, 2006

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Elsa	Posted Hide Post "I have seen often when the question of UK Docs comes up: United Kingdom Christopher J. Mathias, M.D. London W1 1NY Phone: 44-171-886-1468 Fax: 44-171-886-1540 E-mail: c.mathias@ic.ac.uk... " This is a qoute I found from Rosie. This doctor is considered tops in the field.
	Posts: 252 | Location: Southern California | Registered: June 23, 2006

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Elsa	Posted Hide Post Check out STARS.org.UK
	Posts: 252 | Location: Southern California | Registered: June 23, 2006

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tazaza

Posted Hide Post I am under the care of Prof Matthias now-but it took almost 2years to even get an appointment. I know that there are many others that prob aren't even as lucky as me. I am a member of the STARS website-it mainly deals with syncope and surprisingly I found it impossible to find anyone else with POTs on there. Thank god I found this website! Its been so helpful to me. I've recieved a few messages from people around Europe who have told me that they had to go to the USA to even get diagnosed because its so unheard of where they come from.

Posts: 114 | Location: UK | Registered: May 09, 2008

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tazaza	Posted Hide Post Thank-you Elsa for all your help. I keep getting info about the mayo clinic??? someone recommended it might be worth a trip to the US but Im not sure I could cope with it!
	Posts: 114 | Location: UK | Registered: May 09, 2008

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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.