Hi Everyone,

I am getting so desperate. My cardiologist said he thinks I have pots. He said there is nothing I can do about it. My general doctor said the same thing. I feel so bad 4-5 days a week. My headaches are the worst. I just don't know what to do.. I have so many symptoms and knowone will help me with them so I started calling around and I found a dr by the name of Svetlana Blitshteyn. Has anyone used her before? I am in Florida and she is in NY but I can't find anyone in my area that will take me without a referral. Is it worth it to go see a doctor so far away? Do you know of a closer dr to Florida that will take me without a refferal? The mayo clinic said it will take many many months to get in so I just have no idea what to do. I have a 2 month old and I am just missing out on so much!

Thanks!

Hey-

Is this doctor in NYC? I live in NYC and have searched for docs but never heard of her..but that doesn't necessarily mean she isn't good!

Yes, she is in NY. She is in Buffalo. I found her on the Doctor Listings.

She is listed as a Medical Advisor for Dinet
Check out http://www.dinet.org/medicaladvisors.htm

Hi Kimberley,

I see an autonomic specialist in Pensacola, FL. I don't know if you are anywhere near there, but he is very good. In fact has dysautonomia himself and then returned to medical school to become an autonomic specialist. He is listed in the doctors listing--Charles Thompson.

Good luck.

kimberly... I believe that there is a pots dr at the mayo clinci in jacksonville FL. and then there is dr robertson at vanderbilt in mashville tennesse. Uhm i know of a young girl that see some one in memphis? i believe? his name is dr Ian smith...

you might see them on the pysicain list... if you want to travel up north to see dr's.. there is dr. grubb of course in toledo ohio, and dr. fouad at the clevleand clinic...

good luck to youI hope that you can find/get into a specialist closer to home!

Just an update on Mayo Jacksonville: a friend with Dys just spent a week there and said there really wasn't anyone who was really knowledgeable in Dysautonomia--she was disappointed.

Vanderbilt can be great, but you can't choose your doctor--they assign the one they think will be best for you. If you're OK with that, fine, if not, you might not get the person you wanted to see--like Robertson.