I wasn't too happy with the 1 paragraph shoddy results of my tilt table test, so I called the hospital where it was done and asked them to find the ekg strips and handwritten notes. I picked those up today. Interesting, interesting, interesting.

1 - my cardiologist asked for a specific dr to read the results because she is admittedly unfamiliar with dysautonomia. the specific dr is not the dr. that wrote up the results and conclusion.

2 - my initial heart rate was 69 and bp was 137/83. then after a couple minutes of laying down, my heart rate was 63 and my bp was 125/79. as soon as they raised the table, my heart rate jumped to 92 while my bp remained at 123/85. the first 10 minutes, my heart rate was between 92 and 100. then after 10 minutes, my heart rate was consistently over 100 and peaked at 132. the minute they lowered the table, my heart rate dropped to 76.

3 - I had pvc's documented almost the entire 30 minutes. I am sick of hearing from the doctors that pvc's are common, you just feel them more than others. I don't know what they feel like!!!!! and very interesting that when I'm laying down, I had NO pvc's, but when standing, there were tons.

4 - my blood pressure was all over the place, but pretty consistent between 116/77 and 140/83. after they lowered me and I laid for 10 minutes and then sat up for 5 minutes, it was down to 113/58 which is what I consider my normal ish blood pressure. lately its been 13x/8x all the time.

5 - I found an internet article that states many people with POTS have mitral valve prolapse with no regurgitation. I saw the mvp during the echo because the lady doing the test showed me and said it may not end up in the final report (strict criteria on mvp diagnosis). and I realized my echocardiogram report states 'no significant regurgitation'. so there must be a mvp causing non-significant regurgitation because if there wasn't an mvp there there would be no mention of regurgitation....??

I will be sharing all this with my endocrinologist and when i get to see a neurologist at the end of the month.

Why do I have to be my own doctor? I did not have to graduate from medical school to simply analyze information and see so many holes. I know I'm "preaching to the choir".

wantmeback, good for you on getting the info you needed though!