Hi all,

I watched an interview with Greg Page on an Australian television morning show this morning.

He was great. He explained how he didn't know what was happening to him for a few years. That he'd go to doctors and they'd run tests and tell him he was perfectly fine.

Since finding out he has OI he is on medication and I think he said lifestyle changes have helped. He said he's doing better.

He did mention that if the interview went on too long that seated as he was in an armchair with his legs down would eventually make him symptomatic -- my words, can't remember exactly what he said.

I loved it when they asked him how he was doing and he said that although his doctors would like him to say it's easy to live with this, that it is NOT. I cheered at that.

Just thought I'd pass it on. I have POTS and even if my family had been watching they would not understand that OI is a variant of disorders of the autonomic nervous system. None of my loved ones have taken the initiative to read up on POTS although they have had every opportunity to read up on it and I think it's poor form on their part.

I had to laugh when he said that he never knew about such a thing as the autonomic nervous system before he was diagnosed. Either did I. LOL.

Anyway, he was great and I wish him well. Truly Well. Like I wish us all WELL.

That's great. I hope it is posted on the net somewhere.

Looks like Greg changed his web page as well.

http://www.gregpage.com/

Oh, I forgot to mention that he's back having a go at singing but that it takes its toll as he is dealing with shortness of breath. And that he hyperventilates easily. Trying to remember all that he said.

I was just so glad to see someone well known in Australia and elsewhere talk about having dysautonomia.

Oh, and apparently he's an Elvis fan and bought the last car Elvis owned. It sits in his garage for people to look at as it's a collectors item and doesn't drive it.

When I heard him say that I thought, oh, man, take the car out for a spin. Only kidding.

I found a link to his message I don't think it's the same one you saw but it's a nice little clip
http://www.thewiggles.com.au/help/greg.html

Ok I found a radio interview that he did in June. I love how the radio host calls this an "exotic illness". Greg really goes in depth with what he's going through. http://www.youtube.com/watch?v=fTw-QJbkUuI&feature=iv

Jazz,

Thanks for taking the time to post the link. Unfortunately I can't listen to it as I'm on dial-up internet connection until we move house and dial-up doesn't do 'u-tube' well. Darn it.

Greg's really getting the word out there. A lot of people listen to Ray Hadley apparently.

Hi Rosie,

A sleep disorders clinic has opened up in a hospital near to me. Yeah. This week I will be off to my general doc to get a referral to it. The other one was impossible for me to get to and from -- too far for me to travel. But this one is so close to where I live it's a cinch -- as 'cinches' go when you have dysautonomia.

I'm convinced I have sleep apnea and will be really surprised if I don't.

Smiles for you Rosie.