My Dysautonomia symptoms started about 8 months ago (tachy, low BP, hair loss, poor temp regulation). Well now all of a sudden I have urinary urgency, frequency, and I have a hard time emptying my bladder. My bladder is also painful sometimes, especially when full.
I've had an MRI of my head to rule out MS or tumors there. The only thing they can think of now is Interstitial Cystitis, or can this be related to Dysautonomia?
I've also had a "leaky" bladder for many years, possibly only since I've had children, and it seems to be worse lately with these other problems.
Does Dys cause bladder problems for any of you???

My autonomic neuropathy causes just the sort of urinary problems you mention. Your autonomic nervous system governs the rest and digest functions associated with digestion, bm's, urination, etc. Dysautonomia could be causing this issue for you as well.

Interstitial Cystitis is very common with people with dys. I have urinary hesitancy that makes it difficult to empty my bladder at times, usually at night or following any kind of stress.

Interstitial cystitis was one of the first symptoms I had of Dysautonomia. I was having to urinate every few min. day & nite. I was sure I had cancer.

I am assuming you got check for a bladder infection (urine sensitivity and culture).

I have interstitial cystitis, too. Boy, I hope you don't have it! Talk about pain, BUT then I am fortunate in that my "wiring" is all messed up down there (this is what my uro said) and I don't feel the pain regularly. The only bad thing about that is it's a "knife that cuts both ways" (my PCP) in that when I have a bladder infection I can be clueless for quite some time (like this latest one).

If you happen to get frequent infections and find you have IC, too, I recommend periodic urine culture/sens. tests.

(I didn't know it was common among us with dys, but I did know it was for Lyme.)

hugs

I def have bladder problems. Urgency constantly, worse in the past year since the dys got worse as well. Incomplete emptying, peeing in the pants a little, everything. Not b/c of childbirth for me.

Def check out that it's not an infection or anything. But might just be part of the gift of dys!!

I did get checked for a UTI a couple of weeks ago and it was positive. Only thing is, after antibiotics and the UTI was all cleared up, I still had symptoms with negative UTI tests. So what I assume is that the UTI was caused by my inability to empty my bladder and I will probably get more of them.
Mynagirl, your symptoms sound exactly the same as mine. I hate them!
I'm seeing a Urologist and I have Urodynamics testing scheduled to see how much I'm peeing and how much I'm holding back. I think it's also supposed to be able to tell if my problem is "neurogenic". I assume a bladder problem because of Dys would be "neurogenic" (?)

Anyone on any medications that help with this?

Azmombie---
incidently-- do you take any vitamin C supplements? Drink Emergen-C?

For me vitamin C supplements set off my urinary tract problems worse than usual. I only take stuff that has like 5 percent vitamin C in it now! I drink orange juice and such, but I just can't handle the supplement forms of C.

I always feel that people with dys generally have kidney problems and it all trickles down from there (no pun intended).

The kidneys for us usually filter out the stuff we need and hold onto stuff we don't need anymore of.

UTI's and other bladder things I attempted to address for you in my FOR QUESTIONS IN RE post.

AZMombie,
I have a Urologist appt. scheduled too in order to try to sort out "mechanical" (3 C-sections and a total abd. hyster.) - if anything is falling down... and what is neurogenic. (Dys. spinal cord and brain damage). Tired of being so leaky...and, damn this heat, just tired! (AZ. just north of Prescott). C.