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suzybarb
Posted
I was dxed by the Cleveland Clinic with "Generalized Dysautonomia", because along with BP problems, I have a neurogenic bladder and a problem with swallowing.

Does ANYONE have an MD who specializes in Dys, other then Dr. Yan Go at UCLA, (who dismissed me because I didn't have POTS), ???

I have an internist, a cardiologist and a neurologist who are all great, but they collectivly say to "Get a Specialist!"

Thanks to all,
Barb
 
Posts: 89 | Registered: July 07, 2007Edit or Delete MessageReport This Post
Laura35
Picture of Laura35
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I was thinking about going to the Cleveland Clinic now I will make sure I don't see that doctor!! I don't know any docs that are really good because I myself am still looking for one but I am sure someone on here can help you!!

Laura
 
Posts: 125 | Location: Pennsylvania | Registered: February 17, 2008Edit or Delete MessageReport This Post
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The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.