NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  NDRF General Discussion  Hop To Forums  Dysautonomia Talk    dumping syndrome and globulins
Go
New
Find
Notify
Tools
Reply
  
-star Rating Rate It!  Login/Join 
Posted
my globulins are low and gastric emptying study shows dumping syndrome- any one else have this
 
Posts: 14 | Registered: September 28, 2008Reply With QuoteEdit or Delete MessageReport This Post
Picture of Laura35
Posted Hide Post
Is that like gastroparesis? What exactly happens?
 
Posts: 123 | Location: Pennsylvania | Registered: February 17, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
It's like the opposite. The food doesn't sit, it's passed much too quickly. You may just have finished eating when you find yourself having to hurry to the restroom. It makes eating at a restaurant a bit difficult.

I've had problems like this for years, always blaming it on my gallbladder but now that it's out I get it even more often. Triggered by anything remotely fatty, or most commonly anything that I didn't cook myself.
I have no idea what all this has effected in me other then that it's bad on electrolytes and blood volume.

Have you tried cholestyramine yet, Sue? I don't take it everyday as I'm fine some days but I when I do need to take it the stuff helps. It's a gross powder mix, though, that doesn't fully dissolve in water... I was suggested to start taking fiber and to cut down on carbs. I also take PPIs as needed. Obviously, fats are out.
 
Posts: 270 | Location: Oklahoma | Registered: January 30, 2008Reply With QuoteEdit or Delete MessageReport This Post
Picture of janied
Posted Hide Post
My mom has severe dumping syndrome due to a large part of her intestine being surgically removed and Carcinoid Syndrome (a rare kind of neuroendocrine cancer). She avoids eating any fiber and fat and antibiotics. She also avoids large meals and snack throughout the day. She is very skinny and always struggling to keep weight on. She has resorted now to drinking tube feeding since it's pre-digested. Yum...

She takes lomotil, cholestyramine, and tincture of opium to slow down her bowels. I wouldn't recommend the tincture of opium unless you're desparate because it is an opiate and can cause dependence. Also know that the cholestyramine was initially developed to bind to cholesterol and lower levels in folks who had severely high cholesterol. So beware if your cholesterol is already low. Also, it can bind to other medications if taken together and make them inactive. You'll have to consult with your doc or pharmacist about how to space out your meds. The Lomotil is fairly safe to take, as far as I know.

Oddly enough, my dysautonomia makes me have the opposite problem. My mom and I wish we could blend our GI tracts because then we might be about right!
 
Posts: 92 | Location: portland, or | Registered: September 10, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
More reading on dumping syndrome today and laying on the flood too weak to move (and had to get heart rate and palps under control) after an episode earlier made me realize something earlier. I think I may be getting alimentary hypoglycemia from this... Scary thought. If I'm understanding it correctly, it's more of a adrenergic response like postprandial hypoglycemia is.

If anyone else reading this has dumping syndrome, please read up on it and what it can cause.

Ironically, fiber is one of the things that helps.
 
Posts: 270 | Location: Oklahoma | Registered: January 30, 2008Reply With QuoteEdit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  
 

NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  NDRF General Discussion  Hop To Forums  Dysautonomia Talk    dumping syndrome and globulins

The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.