I have had dysautonomia for a few years, with all the regular ever changing symptoms it accompanies. Just wondering if anyone else here experiences chest pain with dys and if so how do they deal with it? I tend to get periods of stabbing and/or dull pain through my chest and back followed by extreme fatigue.

I had MVP and and have had a valve replacement, and have regular tests, (echo etc) but my cardiologist says all is fine.

Thanks for any feedback,

Greg

Yeah according to the docs we are always "just fine" but no one knows our bodies better than we do. If your pain persists then make it a big deal so that they hear you.

I get chest pains from time to time. Sometimes it's dull and sometimes it feels as if my heart is being squeezed like a stress ball.

But if you've already had surgery of some sort replacing that valve then it could be something else.

Greg...I do also experience chest pain from time to time and assume it is dys related. My heart enzymes were positive two years ago for a heart attack, but cathaterization showed no damage. Since, when I complain of chest pain and have an ekg or 24-hr monitor, nothing shows up. The discomfort is very unsettling. My pain is usually sharp, and will last from 30-60 seconds. It's usually severe enough that I clutch my chest and it takes my breath away. I also change positions to try to get relief, but that doesn't help. The pain just subsides on its own.

Hope you can get some answers!

I have always had chest pain on and off with my POTS - had all the tests and nothing wrong - I think it is fairly common with this illness.

I've had the sharp & dull chest pain for many years. I have been told many things by different Cardiologists which I believe to be true. The heart is the largest muscle in our body and when it is in distress in can go into spasms. A muscle spasm of the heart, one Cardiologist prescribed a muscle relaxer and it works sometimes. Then a lot of us do not get enough oxygenated blood to our organs. So the heart lets us know when it needs more oxygenated blood. I used to try relaxing and do some deep breathing. Now I am on oxygen whenever I sleep or when I have these episodes. The oxygen seems to help with the pain.

When you lay down you get more oxygenated blood to the organs. Standing up causes the blood to pool in the abdomen and legs. If the body is deprived for to long you will "FAINT", it's the bodies way of making you lay down.

I also have chest pain. It typically happens when I'm short of breath or just having a bad day. I also believe it is because my heart needs more oxygen (my stress test has shown mild ischemia which I think supports my theory). Other than using it as a indicator that I need to rest, I just ignore it.

hi
I am a newly diagnosed w/DYS
Can you tell me this. I have MVP, not sure yet if a leak. I feel like there is a gas in my chest.Is this just me or common?
I try all positions in sleeping and haven't found one that seems to assist better to get a good nites sleep.
I will be full of questions and reading the board.
thanks

My cardio told me he believes some of my chest pains are due to my MVP. I believe some are from costochondritis and from my back spasms (caused by c-spine disk herniation). Plus, good ole Lyme disease causes aches and pains wherever, whenever, it wants.

The achy feeling concerns me, but it's the sharp ones that really make me worry!

hugs

I have horrendous chest pain at times and no reason for it - have had ekgs, echos, stress tests, cts, mris, xrays, angiogram, holter, blood work...and they always tell my heart and chest and everything else is textbook - no reason for pain. Guessing it's dys related although I don't know why.

I got diagnosed with sympathetic dysutonomia 2 yrs ago lately in the last 6 months I have been getting this really bad chest pain. It usually occurs when I am on my stomach. Last night I got it and it felt like something was jabbing into my lungs I couldnt not breath for about 5 mins I could only get little tiny breaths in with great pain. I have been told by the cardiologist that I have a atrial flutter, sinus tachycardia, superventricular tachycardia, and now a new onset of hypertension when I have always had hypotension. I take a list of medication from midodrine, beta-blockers, florinef, and now topimax for migraines. Anyone get the same pains as if a bone is going through your lungs and lasting for about 5 mins and then stopping. And then feeling like you have a heavy weight on your chest the next day?

So Lastnight I had chest pain and had to go to the hospital. When I got there they did a EKG it did come back abnormal but not having a heart attack just a atrial flutter. Laying there all hooked up on machines they took me to have a chest ct scan done with dye (which burns and is awful) and they tell me after a bit that they found lymph nodes on my lungs. Didnt really tell me much more than that other than I need to have the CT scan repeated in the near future to have those rechecked again. I am guessing this is what is causing me the really sharp chest pain, since they cant find anything else. Boy talk about being annoyed and aggitated.

I have chest pain constantly-daily with pressure. Also, Migraines x3 a week (injections to the head for relief). I have atrial tachycardia, arrythmia and pulmonary hypertension from with syncope (Nuerocardiogenic Syncope/Autonomic Central Nervous System Dysfunction). This disorder alone caused everything - i faint constantly. I cant walk, my balance is off (vertigo), some slurr speech, memory loss, have TIAs, tremors - can't write and barely type and a "frequent flyer" at the ER here in Tampa. They always keep me. My blood pressure skyrockets or plummets it's orthostatic. It freaks the ER docs out - my EP cardiologist spent one hour with me last week and I developed a cough and severe dizziness and my b/p was 180/120 - hearrate 153 for 2 hours - which clonidine kinda helped but on all kinds of meds. Frustration? Who me? I'm just poor and sick - taking Norvasc, Cardizem, Clonodine, Zoloft, Xanax, Flecinaide (this is for the atrial tachycardia/arrythmia), Vanquish for headaches and Depakote for seizures and migraines - I have severe tremors and my Oxygen output is 35% when it should be 88%. I'll be on oxygen next month forever. It's been three years - CONSTANT CHEST PAIN AND PRESSURE, cant breath anymore without a fan hitting my face so i can sleep - my ekgs are horrid but, they keep poking and proding me. I just keep praying that the good Lord will take me home. I lost everything here anyway. Thanks for letting me vent - no one in my family lets me vent except for my daddy, he listens - I'm 44yo and he's 71 driving a cab to support my son and I whom is autistic and 19 yo. My mom is a chaplain and is trying to "cope" with all this. I dont know what to think anymore.

Yep, had 3 done. I had sleep apnea and had a huge mass removed from my throat and sinus cavity (uvolovalvuloplasty) in 2006. Didn't stop the A-Fib. Then they diagnosed me with Autonomic - nuerocardiogenic syncope. Thanks for the info and your response. I feel all alone.

Hugs, Maribel. Are you aware of the PH forum? They are a group of very nice people and maybe if you join it will help you to feel less lonely.

http://www.phassociation.org/Message_Boards/main.asp?board=1

Thank you. Hugs back.