Doe any one suffer with pain, cramping, burning in their feet and sometimes legs? My lower body has never felt the same since pots. What causes this? What causes the tingling in the lips and fingers? Has anyone found something that helps this aside from rubbing it out, meds, vitamin wise. I take B complex, D, calcium/mag/ potassium Multi- etc, but nothing helps it.

This message has been edited. Last edited by: spinning,

yeah, I have neuropathy confirmed at Mayo. My dad has it too from chemo. I seem to tolerate it better than he does and he is not half the complainer I am. I have so much nerve damage my feet will feel freezing the rest of my life. Hands and feet all go to sleep at once.Yeah, it is constant. I tried all the supplements. NOTHING WORKED..not even the rx meds. I had a potassium defiency, but seems like my nonexistent sodium helped more than Klor-kon. Now it usually just makes it into normal range. Potassium deficiency can make it worse.. How about vicodin? Honestly, I just live with it. If u r also getting cold or turning blue, it's bad Raynauds. They all overlap...autoimmune. I sleep in gloves and socks even in the summer. If u find something that helps, please PM me, cuz my poor dad is miserable and I just try not to focus on it, especially when my vitals feel like they are gonna kill me. Do ur fingers and lips get cold and turn blue? If so, see a rheumatologist...but the drugs I used to take intefere with the heart meds. Still worth a try. I have had excellent luck with my current rheumatologist, but neuros make me uncomfortable...yet seeing a new one Tues...POTS guy. I will let u know if I learn anything new. GOOD luck. PM me if u want. I check here about 1 x a week. Fatigue and heart are my biggest obstacles, oh, and my memory! I am a young ditzy professor. Oh, well...life is hard, but where there is life, there is hope, even though it is hard to imagine yet another day like this. I wish u strength.

Sometimes this group just SLAYS me--I just posted a thread on this!!! Then I come back and here's another one just like it. Anyway, hope someone has a clue 'cause I'm watching for it too!

For the cramps, I think, potassium and mag help mine. Sometimes it takes awhile.

The burning/stinging nothing seems to help, it is an unpleasant feeling to say the least. When I am sleeping it disturbs me, because I am cool to the touch (except my hands, sometimes) so I like the covers, but somehow the burning makes me heat up. So, it's off and on with the covers and it drives me insane!

hugs

PS Calcium channel blockers and nitrocream can help with Raynaud's. BB's can make it worse.

I just started having this sensation in my feet (bottom only) about a week ago. I've had POTS for 14 years and this winter I got worsen and new symptoms - some aches/pains; tingling-pins and needles and muscle twitching. It started up after a period of intense stress. I am scheduled for a nerve conduction test to see if I have small fibre sensory neuropathy - I know it doesn't always show up in this test though.

The bottom of my feet is where mine is too...that was the very 1st thing I started to notice with the on set of POTS. Let me know what you find out. thanks

The bottom of my feet is the last place I got new and weird symptoms and hopefully the last. I will let you know what happens - my app't isn't until Sept. 8th.

I'll throw in here that fibromyalgia is a big one for burning sensations in the feet, etc, which also goes along with the autonomic dysfunction stuff.

I hear that neurotin is the drug of choice for neuropathic pain if you can tolerate it, many can't though (or its cousin, Lyrica). I don't know of any suppliments that help, other than the potassium/calcium mixes that can help with cramps.

I've got the burning, tingling in hands and feet now too, which is most noticable and annoying when I'm lying down to sleep. I just try to ignore it and manage to sleep despite it but I know it's a whole lot worse for many others.

Mc, I have RSD and recently started magnesium with my other vitamins. It really seems to help with the burning-type pain! Also I noticed a decrease in pain once I started treated my vitamin D def. (with D and calcium).

It can't hurt--why not try it?

Hope it helps!

For the feet burning, I can get some relief by keeping my feet up. Also, air conditioning helps as does swimming (circulating the blood and the cooling effect of the water).

The burning comes back but I usually get a few hours relief that way.

I am cramping more and more in my feet and legs these past few months and I find standing up and putting full weight on my feet and legs eases the cramping immediately (lucky for me).