quote:

did your mvp with dysautonomia come on suddenly?
Yes and no. I now understand this was what was going on at other times in my life when I had an illness or stress--during my divorce, post partum with both children, post surgeries, when my father died--such like that.

did you have a trigger? did the symptoms come out of nowhere? progress rapidly? or, did you have symptoms your whole life, that progressed more gradually?

The symptoms seem appear very suddenly when they do. This time 2 years ago I broke all the bones in my arm badly and severely dislocated both my elbow and wrist----very stressful in that it took 8 hours in Honduras to get any pain meds or medical care--then I was only given partial anesthesia that left me shaking like a leaf--twice too realign the arm and put pins in it. Then another a few weeks later to remove the pins and force the elbow joint to move. The pin was misplaced in soft tissue with nerve damage--RSD set in. Then two months after that--anesthesia for colonoscopy--then 2 weeks after that hernia repair sugery. Also my hubby had hernia surgery. During this time we had to move internationally to get medical care and fly back and forth several times (I have a bad ear that won't clear so flying causes severe pain). This all happened two years ago--I've been trying to stop the low BP, nausea and shaking spells since. Previous speel I now see as similar didn't last as long--a few weeks to a few months at best--and no where near as severe.

also, has anyone with mvp syndrome taken birth control pills? have any reactions?
While on BP pills I had migraines monthly--bad swelling--and abnormal EEG readings/seizure disorder.

have any of you mvpers had swollen lymph nodes and swollen joints with their mvp syndrome?