I love to read books but haven't been able to the past 2 1/2 months because of all these health issues.

FINALLY on Sunday, I read a book. The Last Juror by John Grisham. It felt so good to read again.

I'm taking the up rollercoaster days and living them to my fullest (read, clean, etc). Because whether or not I enjoy my up days, my down rollercoaster days are still coming.

I share in your joy!

Just curious...do you have particular eye issues that have kept you from reading, in addition to just feeling bad?

I get severe motion sickness at times when my eyes have to track items, such as words on a page.

hi Ceravelo

It is the 'brain fog' that keeps me from reading and the more tired I am, the more fuzzy my vision and brain gets.

Thanks for explaining.

Keep reading while you are feeling well. I have come to enjoy audio books some.

Take good care and enjoy the heck out of your good days!

Congratulations! I know exactly what you mean, I have times where I can read pretty steadily, then I have to give it up for a while. Now I'm in a cycle of reading. I just enjoy it while it lasts. Hope you have a chance to read more good books! It's one of my favorite things in the world.

michelle

Just wanted to congratulate on your accomplishment. I know that brain fog can really mess up trying to put more than two words together and then remember what they meant! I get it with my son all the time.

So glad you could finish a whole book! Keep it up!

Judi

i'm new here, i just got diagnosed with pots. i'm 15 years old, and i've always had so much trouble reading, like i have no idea what's going on, a hard time concentrating i guess. it gets frustrating especially bc my mother gets mad that i don't read more. but reading this..is it because of the brain fog?

Laureejo,

Welcome to the board, hon!

It could be the brain fog or other things along with the brain fog.

For my son, we have done several evaluations and he has quite a bit of difficulty with speech and language and memory. Those difficulties along with brain fog make reading (and all his Language Arts classwork) almost impossible.

Please show your Mom this post, and see if she would not be opposed to taking you for some testing. Has this been a problem your whole life or just when you became sick? And how long have you been sick?

Maybe you could introduce yourself and others would chime in?

Take care

Judi

thanks! i'm very thankful i found this forum. it's so hard when nobody could possibly understand what you're going through if they don't have pots! it's been this way for as long as i can remember, but they think i've had pots since i was four so i wouldn't know if it was from pots or anything else.

Hey, Laureejo,

Sorry you have had to deal with this so long. Either way, an assessmentwould make everyone understand your strengths and weaknesses. Also, if you are struggling in school, your mom may be able to get an 504/IEP plan that would allow for more time when doing assignments, maybe even ways to do assignments without so much reading.

Let her know about this post and see what she says. In the meantime, enjoy what you can and don't sweat what you can't. My son is a visual learner and books will probably never be his strong point. We make sure that he is as well rounded as we can, given POTS and brain fog.

Judi

thank you very much for replying to all my posts judielise, you've been very helpful :]

i am already on the 504 plan because i haven't been in school for about 5 months but most of my assignments are reading assignments >.< it takes so much time to do a simple assignment because i have to reread it over and over again

Glad you are on a 504.

As for the assignments, is anyone helping you? I will often let my son tell me his answers and scribe them. If he forgets a word or two, I will give him choices and he can pick. I don't do the assignment, but I act like a scaffolding holding up his thoughts and brainstorms, so that he can continue without the extra work. He takes a lot of breaks.

I wish I could do more or give more advice. I will try to dig up anything I can.

Take care,

Judi

Congrats Want me back for your reading. I used to be a prolific reader but then found I could only read short articles and such.

Late last year I read my first book (cover to cover) for quite some time. Huckleberry Finn -- a book I'd never read but always meant to. It was such a rewarding book. It took me a full month to read it.

I've always had trouble reading, although novels werent' so hard for me. When at uni in my 30s and early 40s getting my degree I'd have to do all the reading about three times each just to get some understanding of what I was reading. I thought it was because I was dumb, now I realize it was because of brain fog.

Also, I have discovered that when I read my mind tends to stop focussing on the book and start thinking about stuff in my life. I've got to stop that. I'm trying hard to do so.

Laurie joe -- I was a mature age student at uni and had to read things over and over again to understand them. It was time consuming and I had to do three times the reading that other students did but I got there. Just thought I'd let you know about my experience.

thanks for replying blue skies :] it's nice to know i'm not the only one who has to do that. but it sure is a pain x[ especially since like 10 minutes of homework gives me a headache this whole pots thing is very frustrating

I have the problem with the brain fog but also the headaches also hinder my reading! Also dizziness that can make me sick to my stomach trying to read when the dizziness is bad!