NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  Success Stories  Hop To Forums  Share a Success Story    Guess what I did!!!

Closed Topic Closed
Go
New
Find
Notify
Tools
-star Rating Rate It!  Login/Join 
Posted
Hey - Just wanted to share something I did last night. For the first time in many months, I walked on my electric treadmill for 25 minutes!! This was HUGE for me - I used to do it almost every day and could walk/jog a 12 minute mile. Then when my dys. symptoms kicked in I would get so dizzy and lightheaded and get so tachy that it wasn't safe and I just couldn't do it. I've been feeling a bit better the last week and decided to give it a try. I did it! Granted, in 25 minutes I only went .60 of a mile because I was walking so slow but I didn't get woozy or feel like I was going to faint. I did start having palpitations so I stopped but hey, I have to start somewhere. Anyway, it made me happy! I'm going to keep going at it...
 
Posts: 554 | Location: Delaware | Registered: February 03, 2008Edit or Delete MessageReport This Post
Picture of cybermom85
Posted Hide Post
congrats!!!

Careful not to overdo yourself. My son has to walk everyday, and Mayo told him to start in small increments (sp)like at 5 minutes, and add 2 minutes to it every week, till he's up to 30 minutes a day. Right now, he's up to 20 minutes or so.

Thanks for sharing your accomplishment!
 
Posts: 199 | Location: Michigan | Registered: January 28, 2008Edit or Delete MessageReport This Post
Posted Hide Post
CONGRATS!!! That is so great - I am happy for you and so glad that you shared this with us! Hopefully you will be able to continue to do this and get stronger...let us know how it's going.
 
Posts: 495 | Location: MA | Registered: August 16, 2007Edit or Delete MessageReport This Post
Posted Hide Post
that is fantastic! keep it up Smiler
 
Posts: 308 | Location: Brooklyn, NY | Registered: March 15, 2008Edit or Delete MessageReport This Post
Posted Hide Post
Yay!!! I am so happy for you!!

It is a milestone to be able to do it. Hopefully, you won't have a blacklash, but every single step counts!!

Pace yourself, but hope you will be able to have more days like this one.

Judi
 
Posts: 304 | Location: Baltimore, Maryland | Registered: January 15, 2008Edit or Delete MessageReport This Post
Posted Hide Post
Thanks for your encouraging replies. It was definitely a big deal for me.

I have been doing better these last few weeks. All I am taking now is a calcium channel blocker. I feel so much more clear-headed than I did before when I was taking the beta blocker, the anti-arrythmic and the florinef. The calcium channel blocker is doing an okay job but I still get some pretty high heartrates. My Dr. suggested adding a small dose of beta blocker to the mix but I am leery because there are times my pulse and BP drop, especially at night. The beta blocker will just make that worse, then it's back on the florinef to help with that. My dilemna now is if I should just learn to deal with some level of tachy issues yet stay clear headed and less dizzy from med side effects or be more medicated and potentially have less heart issues. I had to go off the meds before because I developed such a toxicity to some of them. Not sure what to do yet......it's always a tough choice.
 
Posts: 554 | Location: Delaware | Registered: February 03, 2008Edit or Delete MessageReport This Post
Posted Hide Post
quote:
Please Wait. Your request is being processed...
[x]

SiteNDRF Forums and Chat
Servleteve2da013
Version1.2.22 build 9062
ModuleForums 4.0.3
Stylesheet"NDRF Colors"
Wordlet Set"Default Wordlet Set"
Logout: NDRF Forums and Chat
Update Groupee Account Re
 
Posts: 18 | Location: Las Vegas Area | Registered: January 29, 2008Edit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  

Closed Topic Closed

NDRF    NDRF Forums and Chat    NDRF Forums  Hop To Forum Categories  Success Stories  Hop To Forums  Share a Success Story    Guess what I did!!!

The National Dysautonomia Research Foundation (NDRF) has established this site to help inform afflicted patients, physicians and the general public on the various forms of Dysautonomia. It is our desire to give timely, as well as, accurate information, however NDRF will not be responsible for the misinterpretation of the information provided. Medical questions and information, should be reviewed with your physician. Questions or problems regarding this web site should be directed to webmaster@ndrf.org Copyright © 1999 NDRF. All rights reserved. Last modified: Saturday June 10, 2006.